17-03-2017 15:00 via theguardian.com

Experience: I reached both the north and south poles

I couldn’t feel my legs or my toes, but what I feared most was failingI was 18 years old, fit, strong and ambitious. I played rugby and squash, and wanted to be a professional golfer. I was really competitive; I still am. One day on the squash court, I fell down for no apparent reason. I jumped up and got on with the game, but soon after I noticed a deterioration in my health. I saw multiple specialists and eventually, after two years, I was diagnosed with limb girdle muscular dystrophy (M
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