'My dad’s been my biggest hero my whole life'

The first time we met Carol Skinner in 2015, she was so relentlessly positive, so often smiling in the face of approaching death, the pair of us (writer, photographer) left the apartment holding back tears.
(Strange. Was she not the ailing one?) Three years later, she’s very much alive — surprise, surprise — and still fighting the good fight against ALS.
“I was living as though I was dying,” she said of the early months with the terminal illness. “I got my aff