Jonathan Pitre: a timeline

June 2, 2000: Jonathan Pitre is born and quickly develops life-threatening blisters in his throat.
July 2000: He’s diagnosed with recessive dystrophic epidermolysis bullosa (RDEB), a rare genetic disease. Those with the disease are missing a key structural protein that connects the two upper layers of skin; without that structural “glue,” the layers do not move together, but blister and tear.
Sept. 2012: Jonathan attends an EB conference in Toronto that changes his life: He mee