My Friend Liz’s Condition Is Rare; So Is Her Passion and Her Spirit

I have known Liz Kennerley for more than 20 years, since before the onset of her mitochondrial disease. Her father and I were high school classmates, and our families have spent summers together vacationing on the Jersey Shore.
Over the years, Liz and I have had many long talks about her disease and her frustration with some of her doctors, her insurance company and her government. For Liz, the uncertainty surrounding the repeal and replacement of the Affordable Care Act means uncertainty about